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Patient Outreach, Research, and Education Manager
Description Grace Science, LLC, dedicated to finding therapies to treat the ultra-rare disease NGLY1 Deficiency, is seeking a Genetic Counselor to serve as a full-time Patient Outreach, Research, and Education Manager to help identify and support patients worldwide. The company is currently advancing toward a gene therapy clinical trial for this monogenic disease. Although NGLY1 Deficiency is an ultra-rare disease, the rate of diagnosis is increasing due to increased genetic testing and awareness. This is an exciting opportunity to join a multidisciplinary advocacy, research, and translational team with direct impact on patient quality of life and care. This individual’
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