The Johns Hopkins ARVD/C Program seeks a Research Program Coordinator to coordinate clinical research activities on ARVC, an inherited cardiomyopathy that causes life-threatening arrhythmias. The ARVD/C program is dedicated to improving outcomes for patients and families with ARVD/C through excellent multidisciplinary, collaborative research; clinical care; education and outreach. Under supervision of a research Genetic Counselor and junior faculty member, the Research Program Coordinator will join our close-knit, multidisciplinary team of three faculty and three staff to coordinate clinical research activities, including data collection and management, maintaining IRB documents, and carrying out day to day activities of multiple clinical research projects.
Specific Duties and Responsibilities:
Work closely with principal investigator to ensure smooth and efficient execution of research protocols.
Responsible for the organization, entry, maintenance, and accuracy of all patient clinical data in a timely and ongoing manner.
Managing the enrollment and consenting process for the randomized genetic counseling clinical trial (RESEQUENCE-GC)
Ensure accurate data abstraction and entry into ARVD/C program databases (Excel, Redcap, GCRC, Qualtrics, Progeny, and SurveyMonkey) through implementation of workflow and quality control procedures. This includes scanning and data entry into multiple databases.
Assembles data from Redcap export as requested.
Obtain informed consent from eligible participants.
Makes suggestions for improving data collection and workflow processes.
Ensures quality control of data entry.
Works with the study team to develop data collection procedures for new studies.
Maintains compliance in protecting patient confidentiality when reviewing, communicating, and accessing clinical data.
Supervises work-study students, ensuring compliance with data entry, management, and human subjects training and compliance procedures.
Under the direction of the PI, maintains IRB protocols and assists in documentation for compliance with protocols for data and sharing of biological materials necessary for collaboration with outside investigators.
Collects outside medical records as needed.
Interviews research participants by phone to document medical history, family history, and exercise history.
Coordinates and conducts study mailings.
Willing to learn phlebotomy skills to collect blood samples for various research protocols.
Occasionally prepares blood samples for transportation to laboratories within and outside of JHU.
Assists with preparation, coordination, planning, data collection during, and management of a yearly weekend Patient and Family seminar.
Other duties as assigned: This may include filing, ordering / stocking supplies, transporting / shipping samples, copying, posting flyers, and other study-related tasks.
The Research Program Coordinator will work as a team member with other research and clinical staff, consistently projecting a professional and courteous demeanor. This position requires close attention to detail and excellent customer service skills in interactions with research participants and staff. The Research Program Coordinator must support the mission of improving outcomes of patients and families with ARVD/C and other inherited heart diseases through collaborative, multidisciplinary approaches to research and clinical care.
Bachelor's degree in related discipline.
Strong computer skills and experience with Microsoft Office software, including Word and Excel required.
Additional related experience may substitute for required education, to the extent permitted by the JHU equivalency formula.
Previous experience with some type of research project strongly preferred.
Excellent organizational skills and attention to detail.
Ability to communicate effectively over the telephone, by email, and in person.
Ability to deal sensitively and effectively with research participants.
Excellent customer service and problem-solving skills.
Ability to work well both independently with limited supervision, and in a team setting.
Some experience using statistical software desired.
Demonstrated knowledge of medical terminology and genetic terminology and concepts highly desired.
Experience with patient / research participant contact in a community or medical setting desirable.
Classified Title: Research Program Coordinator Working Title: Research Program Coordinator Role/Level/Range: ACRO40/E/03/CD Starting Salary Range: $16.75 - $23.00 - $29.30 - Commensurate with experience Employee group: Full Time Schedule: M-F 8:30am-5pm Exempt Status: Non-Exempt Location: School of Medicine - East Baltimore Campus Department name: 10002805-SOM DOM Cardiology Personnel area: School of Medicine
Total Rewards The referenced salary range is based on Johns Hopkins University's good faith belief at the time of posting. Actual compensation may vary based on factors such as geographic location, work experience, market conditions, education/training and skill level. Johns Hopkins offers a total rewards package that supports our employees' health, life, career and retirement. More information can be found here: https://hr.jhu.edu/benefits-worklife/
Please refer to the job description above to see which forms of equivalency are permitted for this position. If permitted, equivalencies will follow these guidelines: JHU Equivalency Formula: 30 undergraduate degree credits (semester hours) or 18 graduate degree credits may substitute for one year of experience. Additional related experience may substitute for required education on the same basis. For jobs where equivalency is permitted, up to two years of non-related college course work may be applied towards the total minimum education/experience required for the respective job.
**Applicants who do not meet the posted requirements but are completing their final academic semester/quarter will be considered eligible for employment and may be asked to provide additional information confirming their academic completion date.
The successful candidate(s) for this position will be subject to a pre-employment background check. Johns Hopkins is committed to hiring individuals with a justice-involved background, consistent with applicable policies and current practice. A prior criminal history does not automatically preclude candidates from employment at Johns Hopkins University. In accordance with applicable law, the university will review, on an individual basis, the date of a candidate's conviction, the nature of the conviction and how the conviction relates to an essential job-related qualification or function.
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