Career Center

The Dr. Joseph Muenzer MPS Research & Treatment Center (Muenzer MPS Center) is focused on improving the outcomes of individuals with mucopolysaccharidosis (MPS) and their families and developing new treatments. The Muenzer MPS Center is dedicated to developing new treatment for children and adults with MPS, a group of ultra rare genetic disorders, including clinical trials to evaluate intravenous administered enzymes engineered to cross the blood-brain barrier as well as other novel therapies, such as intravenous and intrathecal gene therapy and intrathecal enzyme replacement therapy. 

The Muenzer MPS Center (Director Dr. Joseph Muenzer) offers an exciting opportunity for a Clinical Research Specialist to become an integral part of this fast growing and successful team. You will work directly with the PIs (Dr. Joseph Muenzer and Dr. Elizabeth Jalazo) and with the MPS Research Clinical Director (Lindsay Torrice, CPNP) on our clinical trials delivering novel therapeutics to children/adults with MPS and other lysosomal storage disorders. This is a highly rewarding job working with our interdisciplinary and highly collaborative team of physicians, advanced practice providers, research staff, and dedicated health professionals, who love working with children and adults with rare genetic disorders and are dedicated to improving their health and quality of life.
The Clinical Instructor will be responsible for administering neurocognitive and behavioral assessments to pediatric patients enrolled in clinical trials at UNC with Dr. Muenzer or Dr. Jalazo as PI. These assessments include the Vineland Adaptive Behavior Scales (VABS), the Bayley Scales of Infant Development (BSID), the Kaufman Assessment Battery for Children (KABC), the Weschler Intelligence Scale for Children (WISC), and other related assessments as required per study protocol. 

The Clinical Instructor would provide the above assessments to clinical patients seen by Drs. Muenzer and Jalazo as needed. The Clinical Instructor would be expected to provide counseling services to families of newly diagnosed patients with MPS, to patients/families enrolled in clinical trials at UNC and other pediatric neurodegenerative disorders.

The Clinical Instructor will work with members of the study team (including investigators, coordinators, and nurse consultants) to ensure assessments are completed and documented according to study protocols. The Clinical Instructor will participate in study-specific training as required by study sponsors.