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Mercy Hospital

Saint Louis, Missouri

American Society of Human Genetics

Rockville, Maryland

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California

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Lane Laboratory in the Division of Sleep and Circadian Disorders at Brigham and Women's Hospital

Boston, Massachusetts

UC Davis Children's Hospital

Sacramento, California

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Bethesda, Maryland

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Bio-Techne

Newark, California

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Salt Lake City, Utah

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bethesda, Maryland

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American Society of Human Genetics

Rockville, Maryland

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Irvine, California

Children's Hospital Los Angeles

Los Angeles, California

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National Human Genome Research Institute

BETHESDA, Maryland

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Boston, Massachusetts

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Zucker School of Medicine at Hofstra/Northwell

New York, New York

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Univ. of CO School of Medicine

Aurora, Colorado

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Community Research Project Manager
POSITION SUMMARY: The Community Research Project Manager provides critical, multi-faceted support to PPMD’s Vice President of Community Research & Genetic Services and PPMD’s Director of Community Research & Genetic Services. This individual is responsible for the daily curation duties of the Duchenne Registry, as well as supporting the daily operations of the Decode Duchenne genetic testing program. Providing genetic counseling to Duchenne and Becker families via non-traditional methods (phone, zoom, email) is also a core responsibility of this individual. Opportunities for involvement in other projects related to genetic counseling and education are abundant. Dividing their time between supporting key Registry and care projects, the Community Rese


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